Some quick notes

Just another quickie here..

I got the Cpap machine on 6th November. I had an overnight visit to local hospital on 5th, I slept there with their diagnostics machine (variable pressure machine with oxygen saturation measurement) thus they were able to tune the Cpap with proper settings.

So I have been using it now about two weeks. It's hard to describe, how it feels. On the other end sleeping with mask and the hose does hinder sleeping (especially when turning in middle of the night), but on other hand I think I may have slept a bit better. I can't yet say that I'd be feeling much more energetic (or less sleepy), but it's still quite early. According some instructions it may take couple of months before the treatment really starts to show the full benefit, and I don't want to make too early judgement on this.

Seeya..

PS; for what it's worth (aka not much) I do hate the fact that Google keeps cramming that G+ system down to our throats. At the moment I can't even comment Youtube posts with my real youtube.account anymore. I should be using G+ and that's bit too much. IMHO G+ is the biggest failure on Google ever, and it should be terminated ASAP.

PS2; at the moment I have no idea if I ever return to make youtube videos. I hate these changes on youtube and don't really want to support Google with any add-revenue or free content. 

Sometimes things indeed seem to move forward, and occasionally even at considerable speed. Since the last post I have been officially diagnosed quite severe sleep apnea. In a way it's a good to have some explanation to the overwhelming fatigue and long sleeping hours I have been having.

Apparently this sleep apnea has been happening for quite a long time and it just has gotten worse during the years. But when one lives alone, there's no-one to check snoring or breathing while one sleeps, so the early states have gone by without much notice.

When I try to think about the history, there has not been any single incident I could say that could be given as a definite start, most likely many issues I have had with daytime drowsiness and oversleeping during the years have just been early symptoms of things to come. If I now had to make a wild guess, I would like to say this sickness has most likely been around least a decade or so. 


And all in all, it's not the only thing happened to me during this time. Weight changes also affect the breathing, like to Allergies, Asthma, Stress and various infections one tend to have. Most likely all of them on one way or other. Also the sleep apnea has nasty habit on causing overweight and diabetes (which I thankfully don't have) due fatigue and limitations to ones exercising.

So, at the moment.. I have no idea how things move on from here. Apparently there aren't much what medication or surgery could do, it'll be mostly taking care the symptoms with weight control and the CPAP machine. I should be able to get the machine via heath care system, so it should not become too much economical burden, unfortunately at the moment I have no idea when that happens. It may be weeks or months (?) .

Ah well, at least the diagnose is there, and it's not all *merely in the mind* or 'just imaging it'..




ICD 10 : G47.33 Obstructive sleep apnea 
http://www.cpap.com/  Examples of cpap systems.

Yes, I'm still alive. Even though I have to admit, that I have been even less active (due CFS*) during this year than I even feared that might happen when I posted my 2012-wrap up. But on the other hand, this year has given me couple nasty surprises that I really didn't expect to see.

Of the most important to me and the blogging have been two untimely deaths of close friends of mine. I'm not going to mention any names here, but rather try to paint on wide strokes. I'm not right person to write eulogies, so please bear with me.


Firstly, at February I happened to read from local newspaper that an long time friend and associate of mine had died at the middle of January at the age of 47 years. I didn't even knew he was ill, nor had I heard of anything about the funeral, so it was total surprise and quite a shock. And even though we have not been that close at last 10 or so years, we used to do quite a lot stuff together on 1990.es, working together, hacking Amigas, even having a company of our own.

Blog related this becomes due the fact that I have had this vague idea that I could (in time) bring out those early projects we made. I know that many of them are definitely old and useless by now, but I'd expect there to be people who would have been interesting to see how the electronics etc were made back then (no Arduinos or 30usd dev boards).

Alas most of the old goodies of that time was quite randomly spitted amongst us around. So my original intent was to bring him as an repeating visitor to my Diytao channel videos for talking about those old goodies. We could  have shown then, talked about how they were made etc. Unfortunately I now lost access to bigger half of our old stuff, but the most important part definitely had been his memories and insights. We didn't bother to keep much written documentation on paper, and without his help, it's a lot more difficult to reconstruct those old devices.

Second untimely death was at the middle of April, when my local friend dies to aggressive cancer. I had known about her condition about four months, and in a way it was a bit easier to come by. But, no matter how well you think you are prepared, you are not. I'm not sure how much I should write here about her life, experiences or plans, so I'll be cautious. I can just say that she was in process of re.educating herself to become game developer, and I'm sure she had been good at those.

On personal front.. Not much of anything. I have not got any closer of solving my own health dilemma, nor gaining more hours of usefully time.


PS: *  About that CFS; I have no official diagnosis whatsoever, so I just use CFS as a self-declared status for now. As far as I can see, it seems to fit, but I'd rather like to find the real causes and perhaps even a hope for remedy or cure.